I’m alive, although I don’t know if I can say the same about this blog, or other aspects of my life for that matter. My life stopped in April and I’m still trying to take the reigns of it. I still don’t have a definitive diagnostic about what’s wrong with me (I’ll know more next week) but I guess it’s a mix between a severe oral allergy syndrome and histamine intolerance. Around April my life started to be unbearable, I started my peregrination to many different doctors and all this took a heavy toll. Since these two conditions are not very well known and not very well investigated, I started to read, study and soak any related information, which consumed all my energies. All my efforts were focused on knowing what is wrong with me, how to improve it, talking to people with similar issues, visiting doctors, working on my diet. Being ill is a full time job, leaving no energies or time for anything else. I kept doing my job thanks to being extremely lucky and being able to work from home. Otherwise I don’t know how I would have been able to manage. I can’t eat outside. I need to prepare all my meals from scratch, avoiding what is normal and healthy for most people, even spices. I need to know and control all the ingredients in everything I eat to avoid allergic reactions and feeling miserable the day after. And I need very fresh food. I have to avoid all fruits and most vegetables due to my oral allergy syndrome, cereals and potatoes are also out for the same reason, gluten makes me extremely tired and dairy gives me a horrible congestion the same day and even more the day after. And then the eggs. Eating eggs gives me a horrible migraine the day after. Sometimes I don’t get the migraine, but I feel like I have the worst hangover ever, not being able to think or drag my miserable body around our apartment. At least I’m starting to know my triggers and I have to say that my oral allergy has improved a little bit, meaning that my lips and throat are not swelling with every meal I have. Now it’s usually just my lips once or twice a day. That is helping with avoiding losing more weight. Two weeks ago I went to a Mastocytosis research center and my weight was 44.9 Kg. Today it’s almost 46 and I’m not feeling like I’m going to faint if I need to walk somewhere.
Unlike it’s mentioned in “the Fault in our Stars” (read the book, didn’t watch the movie), Maslow’s hierarchy of needs is true, at least for me. I was (am) so busy reading about these diseases that I abandoned all the rest. I stopped knitting in part because of the horrible eczema I have between my fingers (partly due to my allergies, partly due to the medication), then I stopped sewing too. The last makes were a Lady Skater dress, a pair of Prefontaine shorts and a Soma bikini.
I have cut another Lady Skater that I didn’t bring myself to sew. My body has changed a lot since all this started. I think I’ve lost like almost 10 Kg and I don’t know how it will be in the next future. Part of my weight was due to the muscle I got practicing capoeira and I know that I will probably never be able to practice again, at least with the same intensity. In hinder sight, probably the intensity of it has worsened my histamine intolerance. Anyway, I just don’t know where I’m headed. I had a plan of making a pair of shorts for Koen using the Jedediah pants pattern I used last year, but then other things got in the way.
When all this started, when I still had the hope that I was going to get over it quite fast, we decided that this summer we deserved a treat. We wanted to travel again, not very far, not very costly, but just spending some days somewhere else. We rented an apartment for 6 days in August in Lanzarote and hoped for the best. Koen has been complaining a bit for a while about our apartment, just because it’s too small and how wonderful it would be to have an apartment with a terrace and a guest room. And after checking online for some weeks we finally found a lovely place. But it was at the wrong time. Just before Koen had to spend a week in Denver to attend a congress and a week after we had our vacation in Lanzarote. And as I’ve said before, being ill is a full-time job and a vacation in these conditions is not a vacation. That week I lost more than one kilo and I spent quite some time reading and starving.
And Koen was offered a new contract and I had also mine renewed. And if we wanted the apartment, we had to take it at that precise moment, with no time to think carefully because we were in a waiting list and more people were behind us. We moved in one month ago, but with all this, there’s still a lot of work to do here. It’s in a very old building but the apartment has been renovated and it has a wonderful terrace. When we first arrived it was a bit frustrating, since half of the plants were dead and we discovered several surprises, like a problem with the washing machine pipe, the oven door, or the upstairs neighbor being too friendly with pigeons, and the consequent “presents” we get each morning from them. The word to describe the state we found the terrace is decadent. Dead plants, pigeon drops, a broken hose. But the place has quite some charm and it has lots of possibilities. It also means that there’s a lot of work to be done and while it helps me to feel motivated, sometimes it can be a bit overwhelming.
Anyhow, we have a lot more place than before, so I hope I can start sewing again soon. Other good thing of it is that we can invite friends home and that will help me to get part of my social life back. Our previous apartment was very small and we haven’t gone out for several months. No dinners or drinks outside.
I haven’t even read sewing or knitting blogs during these past months, I even abandoned instagram most of the time, but yesterday evening I found myself checking a couple of blogs again. I think the worst is over and I will have my life back soon.
There have been also some changes in the feathery department. Gerry was a bit stressed the first days after the move but he’s enjoying now the fact that he has a lot more space, and one of the windows in the living room has become his favorite spot from where he has a nice view of the square in front of our building.
And do you remember Leslie? The Gouldian finch I found on the street almost two months ago?
He came in a pretty bad state, very hungry and distressed. His health improved but still his behavior was not the one of a happy bird. After a month of trying to find his previous owners with no luck, we decided to give him a girlfriend, and two weeks later Sally came home. You can see that both look very healthy and active, they eat very well, Leslie sings and they seem quite happy together.
P.S.: I haven’t danced in ages. I miss it so much… I hope I can do it again soon…
Glad you’re starting to feel a bit better Elena. You’re new place sounds nice, especially once you’ve sorted out the issues. 🙂
I was thinking some days ago how nice this terrace would have been when you came home to knit! I hope everything is going well with you’re being back there. Take care!
Que bueno leerte de nuevo!!! Yo también creo que lo peor ya ha pasado!! Y me alegro muchísimo de que las cosas, aunque envueltas en un halo de estrés, estén saliendo bien!
Por cierto, cómo ha mejorado el pajarito! Tiene unos colores increíbles!
El verano fue bastante malo, tiempo perdido leyendo sobre la enfermedad, sin energías ni tiempo para nada más. Me da pena que se esté encarrilando todo cuando ya va a llegar el otoño, pero las cosas hay que aceptarlas como vienen.
Leslie ha pegado un gran cambio. Vino muy débil y bastante traumatizado, pero con cuidados y su nueva amiga, parece ya otro. Pensaba que iba a ser temporal, pero ya es parte de la familia.
The new place looks lovely. I hope your health is continuing to improve!
The new place is getting better and better, we love living here. Thank you for your words, I also hope that my health keeps improving and I can have a normal(ish) life soon enough.
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